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In general, health problems like diabetes, heart disease come first when we think of diseases. Every year, the last day of February is marked as Rare Disease Day. Different types of campaigns and programs are conducted on this day to raise people’s awareness about rare diseases.
This year, February 28 is marked as Rare Disease Day 2023. At the same time, famous people themselves are coming forward to spread awareness about rare diseases among people. That’s why today we have brought the names of some such rare diseases shared by famous people whose information is important for you.
1. Pervez Musharraf died of “amyloidosis”.
On February 5, 2023, the news of the death of former Pakistani president Pervez Musharraf was announced. The cause of death was attributed to amyloidosis. Amyloidosis is a type of serious disease, due to which he succumbed after a long struggle. According to the NHS, amyloidosis is a group of rare and serious health problems caused by the build-up of amyloid (an abnormal protein) in the body and cells.
When amyloid protein builds up in the body, it becomes difficult for cells and organs to function properly. If its treatment is not done at the right time, it can cause organ failure. Currently, there is no proper cure for amyloidosis and it is very difficult to remove amyloid deposits. But with early treatment, people can prevent other abnormal proteins from accumulating. His treatment includes chemotherapy.
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2. Samantha Ruth Prabhu suffering from “myositis”
Popular Indian actress Samantha Ruth Prabhu has spoken about her battle with the rare disease myositis. This problem has a bad effect on the body’s muscles and immune system. Due to swelling and muscle damage in the body, even routine activities such as getting up from a chair, holding onto an object, climbing stairs, etc. become a difficult task.
Samantha has been sharing updates about her recovery process with her fans on social media and is trying to stay completely positive in such a situation. At the same time, it is often seen that people are motivated to do this.
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3. Celine Dion revealed she suffers from “Stiff Person Syndrome”
In December 2022, singer Celine Dion revealed that she suffers from stiffness syndrome. This problem is a rare and progressive neurological disorder. In this condition, the muscles of the trunk, arms, and legs become stiff, according to the National Institute of Neurological Disorders and Stroke. At the same time, there is a risk that a person suffering from this problem will become hunchbacked.
Some people are so affected by this problem that they cannot walk, move or even stand. Its symptoms can be controlled with appropriate treatment. Oral diazepam, an anti-anxiety and muscle relaxant, may be a reasonable solution to this problem. Medicines that reduce muscle spasm will also help you in this situation.
4. Bruce Willis talked about his disease “frontotemporal dementia”
Recently, the 67-year-old Hollywood star Bruce Willis revealed that he suffers from “frontotemporal dementia”. Last year he was being treated for aphasia, a disease in which a person loses the ability to speak. Recovering from aphasia, Willis now lives with frontotemporal dementia for the rest of his life.
This is an uncommon type of dementia that causes problems with behavior and language. According to the NHS, frontotemporal dementia affects the front of a person’s brain as well as the sides. Unfortunately, scientists have yet to find a cure for frontotemporal dementia.
5. Justin Bieber was a victim of “Ramsay Hunt Syndrome”
Last year, pop star Justin Bieber was diagnosed with Ramsay Hunt syndrome. According to the Journal of Neurology Neurosurgery Psychiatry, it’s a type of peripheral facial nerve palsy that causes rashes in the ear and mouth. Symptoms such as vomiting, nausea and hearing loss are seen in this condition. To combat this problem, you can engage in activities such as local electronic stimulation, facial yoga, and kinesiology taping.
6. Varun Dhawan suffers from “vestibular hypofunction”
In a 2022 interview, Bollywood actor Varun Dhawan revealed that he struggled with vestibular hypofunction. Which is a type of heterogeneous disorder. According to the Journal of Neurology, the disease is characterized by symptoms such as imbalance, dizziness and oscillopsia.
Dhawan said in an interview that due to this disease he fainted many times while walking. He admitted to having vestibular hypofunction, where you basically “lose your balance.” Later he took help of swimming, yoga, psychotherapy along with some important lifestyle changes to overcome this problem.
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